Tuesday, December 18, 2018

I don't know 12/17/18

 Sometimes I think of living alone in the woods with just books and animals. Maybe that's how I'll die, alone in the woods. That would be fine. As long as I'm comfortable.
Right now, I'm cold, which hurts. Kiddo is awake and has been for the last half hour. It's 3am.
Cedar is high. But isn't bothering me as much as last year. Though this year *is* 3 weeks early.

Wednesday, November 14, 2018

New life?

So I started taking Cymbalta, and stopped taking 5 other drugs. Yeah, I've been on a barely working cocktail for years. So now I'm feeling way way less pain. Like, it's nuts. Both how good it feels in my body, and how much pain I was in before.

So now what? I'm trying to figure out what being functional again even looks like. I've been swimming. And the Cymbalta is really suppressing my appetite. So I see being in shape, and slimming up being a part of this.

The MRI said I have spondylosis of at least the cervical vertebrae. And really the only thing I can do for that is the backstroke. Which I'm already doing. The doctor suggested it, and then laughed, like but no one does that. And I was like, no, I do! And she was surprised and said I was ahead of the game! So that's awesome.

And I've upped how much I'm doing it. And swimming longer. Hunter's class is 40 minutes. I'm trying to swim the entire time. Sometimes pausing to get my breath between laps.

Doing this regularly is changing my swimming. Like, I feel less like I'm flail-panicking through the water, and more like I'm stretch-moving along. Paying attention to how my legs and feet are moving, how full rotation of my arms is impacting my shoulders. How I'm holding my head relaxes my whole body etc. I asked Hunter's swim teacher for a tip on the back stroke. It was hurting my shoulders. And she showed me a completely different way than what I was doing. So now I get to incorporate that...

It's like trying to learn a dance without a teacher.

Anyway, today was the first time I've gotten to swim since I got on Cymbalta. It felt much more comfortable. I hurt right now, from the effort. But I'm hoping I won't flare from it.

I'm relearning how to live without constant massive pain. It's...still very confusing. It's been like 8.5 years of it. And even before then, I wasn't very good at consistent exercise. So yeah, change. A lot to process.

Friday, May 11, 2018

It hurts

Flare. Skin like bruises, fire, ripped, road rash, nettles, sunburn, needles, so much pain. There was a spot on my leg that I thought would have marks it hurt so badly. My shower was like a rain of glass.
My toes each feel like fire. My bones hurt.
How will I live with this for the rest of my life? How will anyone depend on me to be able to do anything? How can I be a good mother and wife? How will I live?
I've been in pain, and migraines, and flared since I don't know, this weekend some time. I know it'll end, or ease up. But it only feels like forever.

Monday, March 19, 2018

End of the trail

We hiked slowly down the trail, pausing to pick up trash, or strewn articles of clothing.  Chasing the little paths that animals make, down to streams where we walked over the fallen trees that become bridges.

We kept going downhill, because that's what you do. The trails ended, but I knew down there was the river. So we followed the little animal trails through the trees, the deep grasses, the Smilax, the Dewberry, the grasping bedstraw.

We got down to the banks, my little boy and me, we found a way to get down into the water. We didn't take our boots off, we just waded through the shallow rushing waters to the little islands of sand, or stone, mud, or algae that looked like islands. We threw rocks in, skipped rocks over, waded up and down the river. So fun and carefree.

Right then, I felt that feeling. You know that feeling, when your hair stands on end, the chills radiates down your arms and your legs from your heart. And then I heard it, steps. In the trees above us. There's no way they couldn't have heard us. But maybe I was wrong. So to my tiny, beautiful as sun, seven-year-old, I said, "get down!" he hesitated. I said, "get down. If I ever say get down, you get down immediately." He asks why, as you would. I said, "I heard steps. We're near the prison. It could be someone who's escaped, or someone looking for them. Or a hunter. Either way we need to get down."

I heard a few more steps, and then nothing. I peered over the little sandbar island, covered in detritus from floods come and gone. I only heard a few more steps and then nothing. I kept watching and waiting. There wasn't really anything I could do but watch. So I just looked.

I've lived in the country most of my life, I can spot a bunny twitching it's ear, a football field away. So I crouched and watched the leaves dapple, the wind bend to the trees, the shadows against the bark, I looked everywhere. And then I saw movement. Just a small one, the tiniest - of a human head ducking behind a tree so as not to be seen. *shit* One of those ducks that a hunter knows. One of those swift silent movements that you make when you've been trained to make one. Trained. So. We're dealing with someone trained. Someone. I'm squatting here, behind this tiny island, with my 7 year old son. I have nothing. Not my phone, my knife, no way out, and far enough of a hike that no one would wander through here any time soon.

Isn't it always the times when you're least prepared, that the most fucked up shit happens? Like the time I got caught in a flash flood, and I was wearing slip. All my years of constantly carrying knives, and survival gear just randomly in my pockets, and the one time I actually might need to use something like that I'm wearing a slip. Universal morbidity.

But here I am, behind this island. I'm wearing normal clothes but I don't have my knife. I'm in boots, my kid's in boots. But nothing else. How do I get us out of this? I'm watching them, hidden down as far as I can be, and then I see the glint. Just the tiniest moving reflection catching on a scope lense. One pointed in our direction

Tuesday, February 13, 2018

Flare day

Pain. Like, woke me up. My skin hurts. Pressure hurts. Like the pressure of my pants around my legs. The hair on my legs hurts. My tongue fucking hurts. My bladder hurts. My freaking organs hurt. What the hell.

My arms and hands hurt. I need my hands to paint. Holy crap. I'm terrified that my body won't let me keep painting.

I got pt today. It hurt. But I'm walking better.

Monday, February 12, 2018

Fantastic.

Soooo my rheumatologist basically said that she's giving me the max meds, and unless I want to go down the opiate path, I'm going to have to just grit my teeth and deal.

So then do I just grit my teeth and deal, or find another rheumatologist, or...what?

Aside from my meds, heat helps. Hot water helps. Kratom helps too.

The idea of maybe another 40 years of this pain is intense. How do people do this? I guess how I've been doing it. One day at a time.